Ready for some good news? Yeah me too because it is about freaking time 🙂
We were able to get in quickly at STL Children’s Hospital to start moving forward with getting Logan a g-tube (or something similar). Logan will have an upper GI (and hopefully cooperate by drinking a bit of barium) Wednesday morning, then around lunch we will meet with the surgeon. We have verified the surgeon has worked on SMA babies before. However, the anesthesiologist will one of the (if not the) most important members of the team. I am calling Monday to schedule a pre-surgery appointment. Fingers crossed we are able to do a Wednesday appointment. Dr. Rosenbaum emailed me earlier with some contact information. I am comforted that we have such great doctors staffed looking out for our best interest.
The final total on our Park Lane Jewelry fundraiser is in…Drum roll please… :)It raised $400 in 7 days!!! Thank you to everyone!!! If you wanted to participate but didn’t get a chance, there is another chance this week. Another show is open until Jan 23rd. You can visit here for all the details: https://www.facebook.com/events/427219154015991/
Logan was having a rough few days/nights. Last night was ok, but the two nights before that were the roughest we have had. He woke every 45min-1hr. I’d be surprised if Brett and I slept 6 hours in 48 hours. We did have him checked and the good news is he does not have an ear infection like we thought! Bad news is we don’t know what is wrong. Our assumption is he is uncomfortable. He can’t move himself, he can’t stretch. We are wondering if his hips are hurting because of the pressure on them. We are looking at getting a special memory type mattress for him within the next week.
This afternoon we did a follow-up interview with KSPR Channel 33, Springfield Mo. It will air tomorrow (20th). There will be a small segment at 5pm with the full interview at 10pm. We will post the link when available for everyone out of the area. Lauren asked some great question concerning our STL trip from last week and the one in the coming week. Logan napped the entire time. He woke up right at the end and gave Lauren a great smile. He really like the big camera Gregory was carrying around. Once he saw it he would not take his eyes off of it. It was windy out today and I saw Lucas flying his kite with my mother in law. We went out to see if Logan could fly it for the camera and I kid you not the wind died. 😦 So no marking off flying a kite on the bucket list. Maybe tomorrow will be windy and we can try again.
Logan has some bucket list adventures coming up soon and we are so excited!!! MO Pro Farms from Republic is setting us up with lettuce seeds and everything we need to grow them. They are fast growing so Logan will get to see their progress. Candace with Blew Photography is coming to do Logan’s six month pictures (fingers crossed she hasn’t come into contact with the flu!!!) before we go to STL. I am going to have several shots done with a bare tummy in case the surgery comes soon than we expect. And the adventure I am most excited about… Melinda with Dickerson Park Zoo is allowing us to go behind the scenes and Logan is going to feed the giraffes!!!! EEEEKKK!!! We picked up Lucas and went to the zoo the day after we got back from STL and I told Brett I hoped Logan would be strong enough come March to feed them because we look forward to that every zoo trip. And now he will get to have that chance!!!
And now for some new pictures 🙂