The weekend was rough. Logan continued to be fussy. For several days, during the first 2 hours of sleep, his oxygen dips down to 86/87 for about 10 seconds them pops back up. This happens about every 15-20 minutes. After 2 hours, he is just fine the rest of the night.
He has not been running a fever. We thought he was teething but nothing is even swollen yet he has continued to chew on his fingers.
Our hospice nurse came by yesterday. She was concerned because he didn’t have any belly sounds. His stomach wasn’t distended or hard, which was very good. However, we still weren’t sure what was going on. We did a saline enema to see if constipation was the issue. Not much came out but he seemed a little happier afterwards.
He slept better last night, but still not good. He would wake up almost every hour and whine. He didn’t want to eat and didn’t want his paci. I would pat his back and turn on his nature sounds and he would eventually give back in to sleep.
They brought us an oxygen machine yesterday evening. I went to put Logan on it and realized we didn’t have the right cannulas. So it was about 3 hours later we received the right ones. By this time, Logan was already asleep for a few hours and didn’t drop in oxygen once. I laughed when I told Brett this. We now have an oxygen machines and he didn’t drop last night or tonight lol.
So on top of all of this, Brett visited with a local funeral home yesterday afternoon to start doing some preplanning. While we hope for the best, we plan for the worst. I would rather have everything planned and still be able to hold my baby boy than to plan everything without the comfort of him near. We have briefly discussed everything and have a loose plan in place.
Can time just stand still? Can we freeze right now? I can’t imagine life with out my baby boy. Plus, Logan is getting so big! Time is going by too quickly…