Well, on Wednesday morning we headed up to St Louis for a post op appointment on Logan’s G-tube/mic-button. A piece had broken off Monday and we were concerned it wasn’t sealing right. We were going to see about having it replaced here in Springfield, but our ped’s office couldn’t do it and home nursing couldn’t do it. We weren’t sure about our hospice nurse, but knew a surgeon in town (who we had never heard of) could do it if we had a button. I went to get our button realized we were given the wrong size. It was my mistake not catching it the first time. The correct button was delivered, but I had already called STL to make an appointment. I was tired of the run around and we needed a post op appointment anyways. About 3hours later we found out our hospice nurse was able to change it. We decided to keep the STL appointment and have her do it if/when it happened again.
We left around 9 for a 1:30pm visit. We were going to see if we could drive back home same day since Logan had done so great in all his other car rides. A suitcase was packed just in case though.
The drive wasn’t bad and we ended up making good time, only stopping once to start Logan’s feed. We arrived a little after 12:30 and they got us right in. The surgeon was really impressed with how Logan healed and was really glad to see him. They ended up not changing the button because it was still sealing fine.
Right after that appointment, we visited with our palliative care doctor, Dr R. She told us how impressed she was with Logan. She was expecting him to be much weaker, but said his color looked good and he was still very alert. She changed his medicine just a bit after seeing him.
We left the hospital after we ate, around 3pm. Stopped to get gas and we talked about trying to go to a park or somewhere fun for just a bit. There were really bad storms around, but they had all gone around us in STL and we knew we would hit a bad line coming back home no matter when we left. So the last minute decision was made to go to the zoo. We wanted to take the boys one day when we had more time, but something told me this might be our only chance.
We arrived at 3:30pm and only had 1.5 hours. We rode on the carousel (Logan’s first big one), rode the train two stops, and saw a few animals we don’t have in Springfield including penguins, hyena’s and a rhino. It was almost closing time after we were done with that and we stopped by the gift shop. I collect shot glasses on our trips and they had penguin shot glasses with Lucas & Logan’s name ❤
The ride home was rough. About a mile outside of Sullivan, MO Logan’s oxygen dropped into the 70’s. He was sleeping and wasn’t recovering. We pulled over and I brought him up with me. I’m glad I did because the storm system hit not too long after that. The rest of the ride home was pretty good. Both boys slept, but Logan’s oxygen hovered in the upper 80’s/low 90’s. Logan slept good after we put him in his bed. It was the next morning that brought trouble…
We had a wonderful, wonderful day though. One we will never forget.